Comments for Professional Patient Perspective http://hospitalpatient.com Chronic Illness Patient Expert Sun, 19 Feb 2012 02:48:44 +0000 hourly 1 http://wordpress.org/?v=3.3.1 Comment on “The Medical Minute” – Understanding the often Long Wait at the Doctor’s Office by Lisa Fields http://hospitalpatient.com/chronic-illness/the-medical-minute-understanding-the-often-long-wait-at-the-doctors-office#comment-2410 Lisa Fields Sun, 19 Feb 2012 02:48:44 +0000 http://hospitalpatient.com/?p=498#comment-2410 Practical Wisdom Give an A+ Medical Minute Understanding the long wait. I really like how you framed this topic. It's easy to forget that we are not always the most important person. Loved how you included RN's as well as the Physicians. This was just a wonderful example of the benefits of a 60 sec educational video. You kept my attention the entire time~not an easy task. Thank you for all your #HCSM work and for advocating for both the patients and for the Health Care Providers! Practical Wisdom Give an A+ Medical Minute
Understanding the long wait.

I really like how you framed this topic. It’s easy to forget that we are not always the most important person. Loved how you included RN’s as well as the Physicians.

This was just a wonderful example of the benefits of a 60 sec educational video. You kept my attention the entire time~not an easy task.

Thank you for all your #HCSM work and for advocating for both the patients and for the Health Care Providers!

]]> Comment on Chronic Pain Soliloquy by Linda Cheek, MD http://hospitalpatient.com/crohns-disease/chronic-pain-soliloquy#comment-2366 Linda Cheek, MD Thu, 09 Feb 2012 11:25:15 +0000 http://hospitalpatient.com/?p=417#comment-2366 Michael, Instead of living a life in pain, why don't you get rid of the Crohn's? You might be asking yourself, "Is that possible?" The answer is, "Yes." The Seven Steps to Healing, described on my website, can heal Crohn's. It's a matter of removing the dysbiosis in your gut with HMF, cleansing, and restoring the enzyme systems with good nutrition. Obviously, your diet is gluten-free, right? That's a start, but there are other things as well. Check it out, and if interested, the answers are there for you. Also, would you be at all interested in affiliating with me in the sale of our two books? I've just recently published Target: Pain Doc. I'd be happy to sell your book on my web site if you would do likewise on your site for my book. I have the capability of selling ebooks straight off my website. If your book is available through POD, you could send me some and I could sell paperback as well. Let me know what you think. Linda Cheek, MD Michael,
Instead of living a life in pain, why don’t you get rid of the Crohn’s? You might be asking yourself, “Is that possible?” The answer is, “Yes.” The Seven Steps to Healing, described on my website, can heal Crohn’s. It’s a matter of removing the dysbiosis in your gut with HMF, cleansing, and restoring the enzyme systems with good nutrition. Obviously, your diet is gluten-free, right? That’s a start, but there are other things as well. Check it out, and if interested, the answers are there for you.

Also, would you be at all interested in affiliating with me in the sale of our two books? I’ve just recently published Target: Pain Doc. I’d be happy to sell your book on my web site if you would do likewise on your site for my book. I have the capability of selling ebooks straight off my website. If your book is available through POD, you could send me some and I could sell paperback as well. Let me know what you think. Linda Cheek, MD

]]> Comment on Chronic Illness & Dependency on Narcotic Pain Medications by Jill Lambert http://hospitalpatient.com/pain/chronic-illness-dependency-on-narcotic-pain-medications#comment-2359 Jill Lambert Wed, 08 Feb 2012 16:34:06 +0000 http://hospitalpatient.com/?p=481#comment-2359 Michael - Once again you have touched on such an important issue that touches so many, including someone who was ver near and dear to me. Too many doctors give out these medications like they are candy, without a real plan and/or a pain management specialist to oversee the process. Hopefully your video will shed some light. Keep up the great work! Michael – Once again you have touched on such an important issue that touches so many, including someone who was ver near and dear to me. Too many doctors give out these medications like they are candy, without a real plan and/or a pain management specialist to oversee the process. Hopefully your video will shed some light. Keep up the great work!

]]> Comment on Celebrities with Crohn’s Disease – There’s only 10 ????? by estefanía http://hospitalpatient.com/crohns-disease/celebrities-with-crohn%e2%80%99s-disease-%e2%80%93-there%e2%80%99s-only-10#comment-2327 estefanía Fri, 03 Feb 2012 06:08:43 +0000 http://hospitalpatient.com/?p=401#comment-2327 Hi! It's true I also like very much the way you express yourself in here. I've diagnose crohn's deseasse since two weeks ago, and I am a little bit devasted, i must say that the two first days were totally depressing because I'm 21 and i looove to smoke and drink beer and that kind of things (i am not an alcoholic or something like that, just a regular girl who likes to hanging around with her friends on weekends) but now I HAVE to stop doing that. You can figurate out that I get here for the same reason you wrote this, I just need some sexy, fun, cool actress with this thing...... of course some of them someday will admited their conditions, and we'll feel a little bit better maybe, not that I wish bad things to people, but of course there are much more than this 10 famous that you said. Anyways, take care! bye Hi! It’s true I also like very much the way you express yourself in here. I’ve diagnose crohn’s deseasse since two weeks ago, and I am a little bit devasted, i must say that the two first days were totally depressing because I’m 21 and i looove to smoke and drink beer and that kind of things (i am not an alcoholic or something like that, just a regular girl who likes to hanging around with her friends on weekends) but now I HAVE to stop doing that.
You can figurate out that I get here for the same reason you wrote this, I just need some sexy, fun, cool actress with this thing…… of course some of them someday will admited their conditions, and we’ll feel a little bit better maybe, not that I wish bad things to people, but of course there are much more than this 10 famous that you said.
Anyways, take care! bye

]]> Comment on What are the most Effective Patient Tools for Today’s “Assertive” Medical Patient? by Rois Dahms http://hospitalpatient.com/patient-technology-tools/what-are-the-most-effective-patient-tools-for-todays-assertive-medical-patient#comment-2218 Rois Dahms Sun, 15 Jan 2012 15:26:41 +0000 http://hospitalpatient.com/?p=461#comment-2218 Hello Crohnie, Just wanted to say thank you for saying it like it is.Amen to everyone of your thoughts and points.My son and I both have Crohn's and have been there done that and wish people understood better the whole picture. Hang in there. Rois and Issac Portland OR Hello Crohnie, Just wanted to say thank you for saying it like it is.Amen to everyone of your thoughts and points.My son and I both have Crohn’s and have been there done that and wish people understood better the whole picture.

Hang in there.
Rois and Issac
Portland OR

]]> Comment on “Humira” – A Miracle PROBLEM Drug for Crohn’s Disease by Kelli McAnany http://hospitalpatient.com/crohns-disease/%e2%80%9chumira%e2%80%9d-%e2%80%93-a-miracle-problem-drug-for-crohn%e2%80%99s-disease#comment-2123 Kelli McAnany Thu, 05 Jan 2012 03:58:56 +0000 http://hospitalpatient.com/?p=174#comment-2123 I started on Humira 3/28/11, for minor plaque psoriasis, and psoriatic arthritis, prescribed by my dermo. Within 6 weeks I was showing symptoms of pustulosis on the soles of my feet the palms of my hands and my entire scalp, at first very minor, then came down with an upper respiratory infection, told to skip a Humira dose, do antibiotics, and resume normal dosing. I've been to the ER three times erythredermic and almost died. I finally confronted the prescribing dermo about the fact that I had a very bad reaction that either he didnt know the signs of, or by the time he recognized he had lost complete and utter control he went into hide and conceal mode, so he never even told me what had occurred to me, I too, had to Google my way to an answer (I know more than most of Dr.'s now) I went from 15% minor plaque Psoriasis to about 85% coverage, and the pustular has to be seen to be believed, pus filled sores covering the soles of the feet and the palms of the hands, but when I got it on around my mouth and chin that was a hard day. And my hair falling out with scabs still attached. I had to watch my elderly parents cry at Thanksgiving, when they saw what had been done to me, my Dad went out into the backyard, but we knew, and it broke my heart. To save my life they had to put me on 300mg a day of Cyclosporine, that was a drug invented for organ transplant recipients so that they dont reject a host donors organ. I then had to travel 2 hours from my home to go see a dermo, I live in a small town and everyone is quite aware of my medical situation, and the Dr.'s all rally around the offending physician and treat me as though I've committed some type of crime, and make me feel like "typhoid Kelli" but I digress... Anyway I'm now on Enbrel, and will be on a systemic biologic for the remainder of my life, because this Dr. missed a side effect of a drug he should have never been allowed to write a prescription for, Abbott just started their "new" commercials for Humira as they have already been in trouble with the FDA for showing people in the commercials with NO Psoriasis. On December 15th for my 52nd birthday, I got to spend it having a blister lanced from my eardrum, and a slit made in the tympanic membrane so that a tube could be placed in my ear, then a small device was used to suction the infection out from behind the membrane, I have never felt pain like that, and it lasted for 6 days, again went to the ER, small ear infection, no fever even, although vertigo, throwing up all over, pain oh the pain natural childbearth didnt hurt that bad or that long, ER Dr. recommended going to see an ENT, yeah thanks, this was 12/10/11 a Saturday, called ENT first thing Monday, nothing available until Thursday, So I suffered with that for almost 6 days, and I have a hearing loss now, but the inflamation is still so bad in the ear (15 day tapered prednisone dose) then more hearing tests to get a factual accounting of damage. And still they wouldnt let me skip Enbrel because I will become Erytherodermic and die within 72 hrs, my life comes first, my hearing second is what I was told. I feel internally inflamed and will probably have to have an internist look to find out what internal damage has been done. And I'm scared, and I'm mad, and have every right to be, we both deserved better than what we got Mr. Weiss...... Kelli I started on Humira 3/28/11, for minor plaque psoriasis, and psoriatic arthritis, prescribed by my dermo. Within 6 weeks I was showing symptoms of pustulosis on the soles of my feet the palms of my hands and my entire scalp, at first very minor, then came down with an upper respiratory infection, told to skip a Humira dose, do antibiotics, and resume normal dosing. I’ve been to the ER three times erythredermic and almost died. I finally confronted the prescribing dermo about the fact that I had a very bad reaction that either he didnt know the signs of, or by the time he recognized he had lost complete and utter control he went into hide and conceal mode, so he never even told me what had occurred to me, I too, had to Google my way to an answer (I know more than most of Dr.’s now) I went from 15% minor plaque Psoriasis to about 85% coverage, and the pustular has to be seen to be believed, pus filled sores covering the soles of the feet and the palms of the hands, but when I got it on around my mouth and chin that was a hard day. And my hair falling out with scabs still attached. I had to watch my elderly parents cry at Thanksgiving, when they saw what had been done to me, my Dad went out into the backyard, but we knew, and it broke my heart. To save my life they had to put me on 300mg a day of Cyclosporine, that was a drug invented for organ transplant recipients so that they dont reject a host donors organ. I then had to travel 2 hours from my home to go see a dermo, I live in a small town and everyone is quite aware of my medical situation, and the Dr.’s all rally around the offending physician and treat me as though I’ve committed some type of crime, and make me feel like “typhoid Kelli” but I digress… Anyway I’m now on Enbrel, and will be on a systemic biologic for the remainder of my life, because this Dr. missed a side effect of a drug he should have never been allowed to write a prescription for, Abbott just started their “new” commercials for Humira as they have already been in trouble with the FDA for showing people in the commercials with NO Psoriasis.
On December 15th for my 52nd birthday, I got to spend it having a blister lanced from my eardrum, and a slit made in the tympanic membrane so that a tube could be placed in my ear, then a small device was used to suction the infection out from behind the membrane, I have never felt pain like that, and it lasted for 6 days, again went to the ER, small ear infection, no fever even, although vertigo, throwing up all over, pain oh the pain natural childbearth didnt hurt that bad or that long, ER Dr. recommended going to see an ENT, yeah thanks, this was 12/10/11 a Saturday, called ENT first thing Monday, nothing available until Thursday, So I suffered with that for almost 6 days, and I have a hearing loss now, but the inflamation is still so bad in the ear (15 day tapered prednisone dose) then more hearing tests to get a factual accounting of damage. And still they wouldnt let me skip Enbrel because I will become Erytherodermic and die within 72 hrs, my life comes first, my hearing second is what I was told. I feel internally inflamed and will probably have to have an internist look to find out what internal damage has been done. And I’m scared, and I’m mad, and have every right to be, we both deserved better than what we got Mr. Weiss……
Kelli

]]> Comment on Reprise – You Know You Are A “Crohnie” when ….. by Michael A. Weiss http://hospitalpatient.com/crohns-disease/reprise-you-know-you-are-a-%e2%80%9ccrohnie%e2%80%9d-when-%e2%80%a6#comment-2028 Michael A. Weiss Tue, 27 Dec 2011 18:04:33 +0000 http://hospitalpatient.com/?p=448#comment-2028 December 27, 2011 To the Folks who Read my Blog and Comment: As I am going through a rough time with my Crohn's Disease, nothing makes me feel better than knowing that by sharing my experiences I am helping other Crohnies better cope with their disease. I had been told that my Book, "Confessions of a Professional Hospital Patient," helped a great many people but with the subsequent advent of the Web and the development of my Blog and Videos I can tell that influence from my experiences are helping people around the world and THAT feels like a GIFT I receive each and every time someone takes the time to tell me how they are so affected. THANK YOU. December 27, 2011

To the Folks who Read my Blog and Comment:

As I am going through a rough time with my Crohn’s Disease, nothing makes me feel better than knowing that by sharing my experiences I am helping other Crohnies better cope with their disease. I had been told that my Book, “Confessions of a Professional Hospital Patient,” helped a great many people but with the subsequent advent of the Web and the development of my Blog and Videos I can tell that influence from my experiences are helping people around the world and THAT feels like a GIFT I receive each and every time someone takes the time to tell me how they are so affected. THANK YOU.

]]> Comment on Reprise – You Know You Are A “Crohnie” when ….. by LittleCrit http://hospitalpatient.com/crohns-disease/reprise-you-know-you-are-a-%e2%80%9ccrohnie%e2%80%9d-when-%e2%80%a6#comment-2021 LittleCrit Tue, 27 Dec 2011 05:22:37 +0000 http://hospitalpatient.com/?p=448#comment-2021 Thank you for this! I am a Crohnnie for almost 20 years now. Some of those just hit the nail right on the head! Thanks for the giggles!!!! Thank you for this! I am a Crohnnie for almost 20 years now. Some of those just hit the nail right on the head! Thanks for the giggles!!!!

]]> Comment on Reprise – You Know You Are A “Crohnie” when ….. by @QuintBy http://hospitalpatient.com/crohns-disease/reprise-you-know-you-are-a-%e2%80%9ccrohnie%e2%80%9d-when-%e2%80%a6#comment-2015 @QuintBy Mon, 26 Dec 2011 09:18:03 +0000 http://hospitalpatient.com/?p=448#comment-2015 Michael, thank you for helping me to better understand Crohn's Disease, which in turn has helped me to better understand what my favorite Crohnie, my son's SO, goes through. Thank you as well for writing 'You Know You Are A Crohnie', which I posted on her Facebook wall and about which she just commented, "I love this!! Thank you so much, it really lifts the spirits!" -Bruce Michael, thank you for helping me to better understand Crohn’s Disease, which in turn has helped me to better understand what my favorite Crohnie, my son’s SO, goes through. Thank you as well for writing ‘You Know You Are A Crohnie’, which I posted on her Facebook wall and about which she just commented, “I love this!! Thank you so much, it really lifts the spirits!” -Bruce

]]> Comment on You know you are a “Crohnie” when ….. by Heather http://hospitalpatient.com/crohns-disease/you-know-you-are-a-%e2%80%9ccrohnie%e2%80%9d-when-%e2%80%a6#comment-1987 Heather Fri, 23 Dec 2011 18:38:48 +0000 http://hospitalpatient.com/?p=441#comment-1987 you mentioned that you are on a liquid diet ( Lollipops and Liquids). In case you weren't aware, Vitamix.com has a Vitamix Medical Needs Program that offers a 25% discount on a reconditioned Vitamix. I've been looking at a one so that I'm ready for my next flare; thankfully I don't need one at the moment. you mentioned that you are on a liquid diet ( Lollipops and Liquids). In case you weren’t aware, Vitamix.com has a Vitamix Medical Needs Program that offers a 25% discount on a reconditioned Vitamix. I’ve been looking at a one so that I’m ready for my next flare; thankfully I don’t need one at the moment.

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