Who said Crohn’s Disease isn’t sexy?

1-Playboy's Suzy McCoppin modeling CDWP August 1 2013

This is Playboy Model and Nightlife/Sex Columnist Suzy McCoppin adding some “Sexy” to the “Crohn’s Disease Warrior Patrol” (the “CDWP”) to commemorate the CDWP receiving its official 501 (c) (3) status from the Internal Revenue Service effective going back to February 4, 2013.  This means that Contributions to the CDWP are now Tax Deductible and the CDWP is now formally a Charitable Foundation.

Suzy McCoppin does NOT have Crohn’s Disease or IBD but she is a good friend of mine who knows all too well from my struggles with Crohn’s and IBD how challenging of a disease it can be.  To that end, she was kind enough to lend her image to help the CDWP extinguish the stigma that Crohn’s, Colitis and IBD are merely “bathroom diseases” or relatively minor “disorders” when they are in FACT chronic, autoimmune, incurable diseases which can be extremely painful and have disabling physical, emotional, psychological, financial, professional, social and familial effects.

What does being a 501 (c) (3) Charitable Foundation mean?

This means that the CDWP can now more effectively raise money from Donors because their contributions/donations to the CDWP are Tax Deductible to the Donors.  These donated monies will be used to further and facilitate its “Charitable Purpose” of matching experienced “Warrior” patients with newer, hospitalized or flared-up Inflammatory Bowel Disease patients to offer them the “Tender Loving Care” (“TLC”), support and information which Health Care Professionals no longer can provide due to inflexible time constraints placed upon them by Health Insurers and by the Healthcare Industry in general.  To that end, volunteer Warriors sign up at the CDWP website and they are matched up with Patients-In-Need of such TLC, support or information who also sign up at the CDWP website.

The CDWP’s Charitable Purpose will soon extend to working with IBD Medical Practices.  In that regard, in late September, 2013, I will be presenting a Speech to an audience primarily comprised of Medical Practices and Health Care Professionals at Stanford University’s prestigious 2013 Medicine X Conference entitled, “Patients helping other Patients is often the best Medicine” – Inflammatory Bowel Disease & the rise of the “Crohn’s Disease Warrior Patrol.”

How we plan to use Donated Money

While the CDWP’s underlying concept of “Patients helping other Patients is often the best Medicine” has resonated with volunteer Warrior patients, it needs to be better promoted amongst struggling patients desperately in need of these services.  This means that a public relations campaign will be necessary to reach these patients whether they are in hospitals, in treatment with IBD Medical Practices or simply managing their disease and staying in touch with other IBDers via Social Media.  As part of this PR campaign, the CDWP’s website will be substantially revised to facilitate all of the above and to bridge global connections with other effective IBD foundations, organizations and CCFA chapters to maximize our presence within the global network of other helpful and prolific IBD Charitable Foundations.  We also want to de-stigmatize Crohn’s, Colitis and IBD so that when a Donor contemplates contributing his or her heard-earned money to help find better treatments or possibly a cure they understand that these autoimmune diseases have disabling effects on patients far away from the bathroom.  Having Crohn’s isn’t “cool” but with the help of mainstream people like Suzy McCoppin, we want to raise the public’s awareness of these diseases to better educate the mainstream in the hope of attracting more contributions which will help more patients.

How to get your CDWP t-shirt?

We started this CDWP t-shirt campaign as a way to raise awareness and some money while we were in-between filing for 501 (c) (3) status and becoming an official Charitable Foundation as determined by the United States Internal Revenue Service.  We partnered with an innovative and effective Crowd Source Funding company, MedStartr.com, for this purpose. The campaign was successful but ended June 30, 2013.  Due to the mainstream’s positive response to the aesthetics of the CDWP t-shirt, I recently began negotiating with hospital gift shops to sell the t-shirts so patient visitors could purchase them for hospitalized IBDers.  Those negotiations are on-going and if successful we will likely make the current design exclusive to hospital gift shops but we have two (2) other cool CDWP t-shirt designs ready to print.  However, these original CDWP t-shirts are still available to the general public and if you would like one, please visit the CDWP website and click on “Buy Now” underneath the t-shirts.  You can also click on “Buy Now.” Thereafter you will be prompted to an ORDER FORM where you must indicate the no. of t-shirts, sizes and mailing address and you are asked to pay for the t-shirts via PayPal.  To do that via PayPal, all you will need to do is “pay” the email address CrohnsDiseaseWarriorPatrol@gmail.com.   Alternatively, you can simply send ME a check made payable to “Crohn’s Disease Warrior Patrol” and indicate the above information.  Please mail that to:  Michael A. Weiss, Executive Director, CDWP, 184 Zeppi Lane, West Orange, NJ 07052.  (We will make this “Buy Now” process more seamless once we revise the CDWP website and we just ask for your patience in that regard.)

Making a Tax Deductible Donation to the CDWP

Once the CDWP website is revised (and in the interim you can simply click through now on the phrase “Donate Now“), you can simply click on the “Donate Now” button to make a Tax Deductible Donation.  Thereafter you will be prompted to a Donor FORM where you must indicate the amount of money you’d like to contribute via PayPal.  To do that via PayPal, all you will need to do is “pay” the email address CrohnsDiseaseWarriorPatrol@gmail.com.  Alternatively, you can simply send ME a check made payable to “Crohn’s Disease Warrior Patrol” in the amount you desire.  Please mail that to:  Michael A. Weiss, Executive Director, CDWP 184 Zeppi Lane, West Orange, NJ 07052.  Again, we are in the process of simplifying this process as we revise the CDWP website and appreciate your patience and understanding.

Thank you for your interest and support.

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