These Links are simply listed for your reference as informative, interesting and possibly helpful resources.
NOTE: The Recommended Links listed below are not officially endorsed by Michael A. Weiss or by this website and therefore Mr. Weiss and this website are not responsible for any content contained in any of the below Links.
http://www.crohnsdiseaserelief.com/my-story.html - Blog of 40-something woman diagnosed with Crohn’s Disease in 2006.
http://beingapatient.blogspot.com – Blog of Candid UK gentleman undergoing a Small Bowel Transplant.
http://about.me/agirlwithguts – A website founded by Sara Ringer to empower girls of all ages living with Inflammatory Bowel Disease.
http://www.chronicbabe.com – Informative website whose mission is to “help young women with chronic illness be their best…to be Babes!”
http://www.diabetesmine.com – Straight Talk & Encouragement about Diabetes via a “diabetes newspaper with a personal twist.”
http://www.butyoudontlooksick.com – The mission of this website, “ButYouDontLookSick.com” is to help everyone with a chronic illness or invisible disability, in order for them to live their lives to the fullest and not feel isolated and alone.
http://jennisguts.blogspot.com- A humorous spin on life with Crohn’s Disease along with Fibromyalgia and Depression.
Virtual Patient Communities/Social Health Networks
http://rawarrior.com – Helpful online community and informative website about Rheumatoid Arthritis.
http://crohnology.com – Active Social Health Network for people with Crohn’s Disease.
http://www.facebook.com/ItTakesGuts - “Life Takes Guts” supportive Facebook Page for Inflammatory Bowel Disorder sufferers.
http://www.patientslikeme.com – Patients share real-world health experiences in order to help themselves, other patients like them and organizations that focus on their conditions.
http://diabetessocmed.com – Diabetes Social Media Advocacy (“DSMA”) is involved with, and promotes, social media in all its forms to empower people affected by diabetes and to connect them with each other to foster support and education.
http://www.mdjunction.com – Online Support Groups and a Social Network that serves as a meeting place for people with health challenges regarding every conceivable disease, condition, body part, etc. to help and get help.
http://www.health2news.com – News for and about the “Health 2.0” community which is generally defined as the impending convergence of health care social networking, virtual patient communities, increased dependency on online medical reference sources and health care social media.
http://www.facebook.com/FMersUnite – Surviving Fibromyalgia & Chronic Illness by striving to get others vocal about an illness that is very debilitating & difficult to live with.
http://www.nurse.com – Operated by Gannett Healthcare Group (publisher of Nurse.com, Nursing Spectrum, NurseWeek, Today in PT, and Today in OT), this is an informative online community for Nurses, Nursing and Healthcare.
Health Care Social Media (“HCSM”) Tools
http://www.ccfa.org – Crohn’s & Colitis Foundation of America is a non-profit, volunteer-driven organization dedicated to finding the cure for Crohn’s Disease and Ulcerative Colitis.
http://socialmedia.mayoclinic.org – The Mayo Clinic Center for Social Media exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic.
http://thehealthcareblog.com – The Health Care Blog is a Web Newspaper of sorts which focuses on the intersection of healthcare, technology and business via contributions from different Healthcare Bloggers.
http://blog.theberylinstitute.org – This “Patient Experience Blog” is operated by the Beryl Institute which is the global community of practice and premier thought leaders on improving the patient experience in healthcare.
http://www.kevinmd.com/blog – KevinMD.com is one of the web’s leading destinations for provocative physician commentary on breaking medical news. It features Dr. Kevin Pho.
http://www.codeblog.com – Also known as “Tales of a Nurse,” this experienced Intensive Care Nurse’s Blog examines the highs and lows of working as a Nurse in the rapidly changing healthcare field. The author often interviews people in a variety of nursing positions and she makes it a point to interview obscure or out-of-the-ordinary nurses, like corrections facility practitioners and the like.
http://healthsocmed.com – This is the information website for the weekly chat (Sunday @ 9pm EST) on Twitter (i.e., #hcsm) focusing on healthcare communications & social media.
Medical Disability & Advocacy
http://patientc.blogspot.com – Disability oriented blog where issues are discussed with varying degrees of humanity, sarcasm and intensity.
http://www.advocacyforpatients.org - Jennifer C. Jaff, Esq. is an attorney and founder of “Advocacy for Patients with Chronic Illness, Inc.,” a tax exempt organization which provides free information, advice and advocacy services to patients nationwide with chronic illnesses in areas including health and disability insurance, Social Security disability, employment discrimination, educational equity, and resource location.
http://www.ssa.gov/disability – Social Security website with detailed information regarding the process of filing for Disability Benefits.
http://reginaholliday.blogspot.com – A Medical Advocacy Blog where art, medicine, social media and pop-culture collide and create a patient voice in health information technology.
http://www.wegohealth.com – Empowering Health Activists to help others.
http://www.insurancenightmare.com – The Patient’s Advocate, i.e., Mary Jane Stull, will work for Patients to tame the Insurance nightmare that on top of their underlying medical condition is threatening to sap their strength. She will collect bills, whether they are in a shoebox, a folder, or whatever, sort through them, contact insurance companies and medical service providers to pave the way for full recovery of insurance benefits the Patient deserves.
The News & Business of Health
http://abcnews.go.com/Health – ABC News Health News Headlines.
http://www.msnbc.msn.com/id/3032076/ns/health – MSNBC Health News Headlines.
http://news.yahoo.com/health – Yahoo Health News Headlines.
http://www.nytimes.com/pages/health/index.html – The New York Times Health Section.
http://www.youtube.com/TheMedicalMinute – “The Medical Minute” provides short videos (i.e., under 5 minutes) about timely and practical healthcare issues.
http://blogs.wsj.com/health – This is the Health Blog of the Wall Street Journal which offers news and analysis on health and the business of health. The blog is written by Katherine Hobson and includes contributions from staffers at The Wall Street Journal, WSJ.com and Dow Jones Newswires.
http://healthcarebloglaw.blogspot.com – Written by Bob Coffield, a health care attorney, this is a Healthcare blog which focuses on health care law with additional emphasis on the health care industry, related privacy issues, security concerns and the application of technology to the practice of medicine.
LinkedIn Healthcare Groups
http://www.linkedin.com/groups?gid=3211420&trk=myg_ugrp_ovr – Professionals with Crohn’s Disease.
http://www.linkedin.com/groups?gid=2151541&trk=myg_ugrp_ovr – Chronic Pain Management Support.
http://www.linkedin.com/groups?gid=80236&trk=myg_ugrp_ovr – Health 2.0 discussions.
http://www.linkedin.com/groups/Digital-Health-2181454?trk=myg_ugrp_ovr – Digital Health discussions.
http://www.linkedin.com/groups?gid=1049717&trk=myg_ugrp_ovr – “mHealth” or Mobile Healthcare discussions.
http://www.linkedin.com/groups?gid=1826774&trk=myg_ugrp_ovr – The Empowered Healthcare Community.
http://www.linkedin.com/groups?gid=1870757&trk=myg_ugrp_ovr – American Society for Pain Management Nursing (ASPMN).
http://itsyourhealthnetwork.com – “It’s Your Health” is a nationally syndicated radio show hosted by Lisa Davis which features interviews with noted Healthcare Authors, Bloggers and it also broadcasts regular Patient-centric segments such as “The Professional Patient Perspective.”
http://www.optimalhealthseekers.com – Live Internet Radio Show hosted by MS patient Trish Robichaud that educates inspires and empowers people seeking to find their own personal level of optimal health.
Books & Magazines
Confessions of a Professional Hospital Patient – Written by Michael A. Weiss. It is a Funny, Inspiring and REAL Account of Michael’s numerous battles w/ Crohn’s Disease & Chronic Illness. The Book has received excellent reviews and has helped put smiles on the faces of people all over the world fighting the same good fight. It is now available as an eBook on both the KINDLE and the NOOK devices.
Critical Conditions: The Essential Hospital Guide to Get Your Loved One Out Alive – Written by Martine Ehrenclou. A step-by-step guide to a successful hospital stay based on over 150 interviews with registered nurses, physicians and hospital staff, Ms. Ehrenclou’s own experiences with hospitalized family members and hundreds of hours of research.
The Take-Charge Patient: How You Can Get The Best Medical Care – Written by Martine Ehrenclou. With advice and anecdotes from over 200 health care professionals and patients, Ms. Ehrenclou explains how to empower patients to become pro-active, assertive and well-informed so they obtain the best Medical Care.
Crohn’s Advocate Magazine – A Free Monthly Magazine about all things pertaining to Living with Crohn’s Disease.
http://www.healthcarereformmagazine.com – Healthcare Reform Magazine (online) provides answers and solutions to how Healthcare Reform affects your business and how you can comply with it whether you are for Healthcare Reform or against it.
Twitter Healthcare Tools
http://www.symplur.com/healthcare-hashtags/diseases – Disease Hashtags for Twitter.
http://www.symplur.com/healthcare-hashtags/regular – Healthcare Hashtags for Twitter
http://www.symplur.com/healthcare-hashtags/tweet-chats – Healthcare TweetChat Calendar for Twitter
We hope you will find these links interesting and helpful.