Greetings from Stanford’s 2013 “Medicine X”

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October 13, 2013 – A few months ago amidst my seemingly never-ending medical problems and complications from Crohn’s Disease to Chemotherapy and all painful and expensive points in-between, I was initially contacted by Nick Dawson and Britt Johnson from Stanford University’s “Medicine X” about me qualifying for a “Medicine X” ePatient Travel Scholarship.  Since Nick and Britt seemed very nice and I was familiar with their respective dedicated efforts to the ePatient movement via various healthcare social media platforms, I let myself get excited but I was guarded in my optimism.  I thought, “Could there really be something special and extraordinary in store for me as I embarked upon my 3rd year of fighting for Social Security Disability Benefits and having to live with my wonderful Mom because of mounting medical bills?”

Nick, Britt and Sara Kucharski then “interviewed me” on Google+ about an Ignite Speech I wanted to present at “Medicine X” and every once in a while they kept referring to the same man, Dr. Larry Chu, and to his incredible vision for this “Medicine X” Patient-centric “Program.” The more I learned, the more intrigued I became.  When they told me they were flying me out to Stanford University in Palo Alto, CA and putting me up a beautiful hotel for the weekend of Friday, September 27, 2013, through Sunday, September 29, 2013,  I felt at ease with my decision to trust these three (3) new nice people who had entered my life.  After specifics were further elaborated upon, I was actually flown out from Wednesday, September 25, 2013, and I stayed an extra night on Sunday, September 29, 2013, so I could have Monday, September 30, 2013 to unwind, as my travel day.  That extra day came out of my pocket but I needed the extra time to account for the health difficulties I typically run into when I travel and besides, the way the “Medicine X Program” was explained to me, my investment of one night of lodging in California was a small price to pay for the extraordinary experience I was about to have.

Many people vie for these Medicine X “ePatient Scholarships” so I thought I would convert my good fortune into an opportunity to bring “Medicine X” to those who, for whatever reasons, were not selected to attend this year.  The best way I know how to do that is through short Video Interviews with the interesting people I knew I would meet at “Medicine X.”  In that regard, the following Eighteen (18) succinct Interviews represent a well-rounded assortment of the people I met at “Medicine X.”   The common theme amongst them is “being INSPIRED” by “Medicine X” and thus I hope that feeling comes through the Videos so you can experience that same extraordinary feeling. Accordingly, I urge you to BOOKMARK this Blog Entry and try and watch EACH & EVERY Interview at your convenience because I’ve never come across a medical conference or healthcare event which elicited such strong and useful intellectual information, emotional responses and ePatient camaraderie.  (I apologize to the 2 or 3 people who I interviewed but unfortunately lost their footage or accidentally taped over it.)

Michael Seres, Crohn’s Disease ePatient & Intestinal Transplant Recipient/Advocate

Marion O’Conner, UK Specialist Dietician in Intestinal Transplants

Joseph Riffe, Prosthetic Device ePatient, Advocate & working Amputee Paramedic

Emily Kramer-Golinkoff, Cystic Fibrosis ePatient/Advocate

Dr. Bertalan Mesko, Medical Futurist

Britt Johnson, Rheumatoid Arthritis ePatient & Advocate

Dr. Wendy Sue Swanson, Pediatrician, Mom & Executive Director of Center for Digital Health at Seattle Children’s Hospital

Lisa Fields, Co-Founder of “Healthcare Leader Tweet-chat”

Casey Quinlan, Breast Cancer Survivor, Open Access Data & Healthcare Price Transparency Advocate

Susannah Fox, Associate Director, Digital Strategy, Pew Research Center

Sarah Kucharski, Fibromuscular Dysplasia (“FMD”) ePatient, FMD & Rare Diseases Advocate

Emily Bradley, Autoimmune Arthritis/Still’s Disease ePatient and Advocate

Terri Wingham, Breast Cancer Survivor and ePatient Advocate

Karen Solis, Fibromyalgia ePatient and Advocate from Mexico

Nicole Estanol, Rheumatoid Arthritis ePatient and Advocate

Karen MacDonald, RN, VP, Innovation & Delivery, Consumer’s Medical Resource

Alicia Staley, 3-Time Breast Cancer Survivor, ePatient and Advocate

Lori Marx-Rubiner, Breast Cancer ePatient and Advocate

 

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One Response to Greetings from Stanford’s 2013 “Medicine X”

  1. Pingback: Stanford Med X 2013: Postcards from Summer Camp | Unnatural Language Processing

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